3.5.0.0 Screen­ing for Type 1 Di­a­betes Risk

The in­ci­dence and preva­lence of type 1 di­a­betes is in­creas­ing (33). Pa­tients with type 1 di­a­betes often pre­sent with acute symp­toms of di­a­betes and marked­ly el­e­vat­ed blood glu­cose lev­els, and ap­prox­i­mate­ly one-‍third are di­ag­nosed with life-‍threat­en­ing DKA (2). Sev­er­al stud­ies in­di­cate that mea­sur­ing islet au­toan­ti­bod­ies in rel­a­tives of those with type 1 di­a­betes may iden­tify in­di­vid­u­als who are at risk for de­vel­op­ing type 1 di­a­betes (5). Such test­ing, cou­pled with ed­u­ca­tion about di­a­betes symp­toms and close fol­low-‍up, may en­able ear­li­er iden­tification of type 1 di­a­betes onset. A study re­port­ed the risk of pro­gres­sion to type 1 di­a­betes from the time of se­ro­con­ver­sion to autoan­ti­body pos­i­tiv­i­ty in three pe­di­atric co­horts from Fin­land, Ger­many, and the U.S. Of the 585 chil­dren who de­vel­oped more than two au­toan­ti­bod­ies, near­ly 70% de­vel­oped type 1 di­a­betes with­in 10 years and 84% with­in 15 years (34). These find­ings are high­ly significant be­cause while the Ger­man group was re­cruit­ed from off­spring of par­ents with type 1 di­a­betes, the Finnish and Amer­i­can groups were re­cruit­ed from the gen­er­al pop­u­la­tion. Re­mark­ably, the find­ings in all three groups were the same, sug­gest­ing that the same se­quence of events led to clin­i­cal dis­ease in both “spo­radic” and fa­mil­ial cases of type 1 di­a­betes. In­deed, the risk of type 1 di­a­betes in­creas­es as the num­ber of rel­e­vant au­toan­ti­bod­ies de­tected in­creas­es (35-37).

Al­though there is cur­rently a lack of ac­cept­ed screen­ing pro­grams, one should con­sid­er re­fer­ring rel­a­tives of those with type 1 di­a­betes for an­ti­body test­ing for risk as­sess­ment in the set­ting of a clin­i­cal re­search study (www.di­a­betestrialnet.org). Widespread clin­i­cal test­ing of asymp­tomat­ic low-‍risk in­di­vid­u­als is not cur­rently rec­om­mend­ed due to lack of ap­proved ther­a­peu­tic in­ter­ven­tions. In­di­vid­u­als who test pos­i­tive should be coun­seled about the risk of de­vel­op­ing di­a­betes, di­a­betes symp­toms, and DKA pre­ven­tion. Nu­mer­ous clin­i­cal stud­ies are being con­duct­ed to test var­i­ous meth­ods of pre­venting type 1 di­a­betes in those with ev­i­dence of au­toim­mu­ni­ty (www.clin­i­caltri­als.gov).